The lack of protein means that the muscles are gradually wasting away and becoming weaker. This is a chronic condition with no cure.

Ruby has type II SMA which means that is unable to walk or to hold herself up without support. She is a wonderfully happy child. Her electric wheelchair gives her much needed independance but as she grows, her physical and support needs will change. Ruby starts school in September and is hoping to get a new wheelchair which will allow her to achieve day to day tasks with supported standing - such as washing her hands, digging in the garden and reaching work tops and desks on her own.  We are doing a series of fundraising events to try and raise £20,000 for this much needed wheelchair. Children with SMA develop scoliosis, this new chair will correct the spine which is moveable at the moment and support Rubys head to stop her falling forward


We are on a countdown now to the weekend of events coming up from the 10th to the 13th September, 2010.  Please remember it is £15 per motorhome, caravan or tent to camp on the racecourse, croft road from Friday 10th September to Monday 13th.  Campers can arrive from 9.00 am on Friday 10th and must vacate by 4pm on Monday 13th. *Campers can arrive and pay £15  on the gate but please be aware that we can only provide 400 pitches so to guarantee a pitch please book in advance through in_aid_of_ruby_crowther@hotmail.co.uk
Pets are welcome but they must be well behaved and any mess cleaned up immediately.  Bring along your friends and family to make it a weekend to remember!

Saturday 11th and Sunday 12th are the family fun days open to the public from 10.00am until 6.00 pm, small donations requested on entering and £1 to park for the day. Saturday and Sunday will have motorhomes and caravans for sale, camping accessories, stands, food & drink, go-karts, face painting, kids rides, birds of prey by Tiz a falconer.  Animal mania will be offering hands on animal encounters from the cute and fluffy to the more exotic.  There will be lots of raffle prizes to be won and a tombola. 
At 11.00 am and 12.15pm on both days there are cheerleading and street dance workshops available for a donation.  These are being put on by Dance in Motion from Malvern who are also the Worcester Warriors cheerleaders.  They will also put on a 15 minute display at 12.00pm.

There are stalls to suit everyones tastes, artists doing artwork from photos you bring on the weekend, bouncy castles and inflatable slides, kids clothing by www.comerainorshine.co.uk
Capture your childrens artwork and fingerprints in silver forever, have a storybook commissioned just for your child, come along and make your own jewellery or just walk a few stalls down to where there is a big choice of one off jewellery pieces, cream teas, ice-creams, cakes plus much more.

On Sunday SK8 and Play will be available between 10.00 and 4.00 pm with all their equipment, please give a small donation for a go!  You can also watch three men having their legs waxed and one man his back waxed for sponsors in aid of Ruby.  These men all belong to the Worcester Wanderers rugby team.

Saturday will be opened by the Mayor and Mayoress at 10.00 am.  Please come and enjoy!